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Families

Resources for families.

S.P.A.R.K.L.E.

  • Supporting
  • Parent
  • Access to
  • Resources
  • Knowledge,
  • Linkages and
  • Education

A program for individualized learning that helps families be better advocates for their child.

Group workshops/training sessions for families are offered throughout the year.
Resources can also be accessed at your home via DVD technology and Parent Guidebook.

The SPARKLE training utilizes a manual and DVDs to teach you about the following topics:

  • deaf-blindness
  • vision
  • hearing
  • touch
  • concept development
  • intervention
  • communication

A Facilitator can provide guidance, support, and resources to families as appropriate.

For more information about the SPARKLE Training, please contact the ksdeafblind@kssdb.org.

There are a limited number of parent scholarships available each year.   Generally, these are used to sponsor participation in joint Families Together/Kansas Deaf-Blind Project activities.   Scholarships to other training programs may be considered. Please complete the Application for Family Scholarships under forms.

If you need more information, please contact

Lisa Collette, Family Engagement Coordinator
ksdeafblind@kssdb.org

Discover CVI is a place for families to connect, share ideas, information, and resources about Cortical Visual Impairment.  The group meets 4x a year online (or in person) for 30 minutes to an hour on related topics about CVI. If interested to join this group, please register ath

https://form.jotform.com/81925819584168

Kimberly Freeman is the Kansas CHARGE Parent Liaison.   She will assist the KS Deaf-Blind Project in disseminating resources, and promoting connections among CHARGE families in Kansas.

If you have a child with CHARGE Syndrome, please contact:

Kimberly Freeman
kansaschargeliaison@gmail.com

Supporting You is a statewide support/mentorship program to connect Kansas families with other families in Kansas who are raising children with special needs and needs a lending ear.  Our families of children with deaf-blindness are not alone in their journey and can talk with other families who have gone through similar experiences. Supporting You is in partnership with the KDHE.

This group is a collaborative effort among the National Family Association for Deaf-Blind (NFADB), the National Center on Deafblindness (NCDB) and State Deaf-Blind Projects.  F2FC offers a platform for families to connect and share support with one another by sharing information and resources and just being present to listen and understand the challenges and triumphs of raising a child with deaf-blindness.

The primary source for information on Usher Syndrome. Usher Syndrome is the most common genetic cause of combined deafness and blindness.  Please contact the KSDB Project to find appropriate support and resources.

Families Together is the Parent Training and Information center serving KS families who include a child with any disability, are birth through 26. They connect you with community resources and work to improve education results for all children, and will help resolve problems between families and schools or other agencies.

Learn more about Families Together and how they can help you here: www.familiestogetherinc.org

Wisdom from Parents of Children Who are Deaf-Blind

https://nationaldb.org/library/page/787https://nationaldb.org/library/page/787

Helen Keller National Center for Deaf-Blind Youths and Adults

The HNKC Great Plains Regional Offices bring HKNC resources to you. The regional representative knows all about the programs and services that are available to deaf-blind individuals, their families and service providers in each state and beyond, and can help individuals find and access the ones that are right for them. Whether interested in learning about support services nearby, wanting to take advantage of the technology available through the National Deaf-Blind Equipment Distribution Program (NDBEDP), or wanting to explore the possibility of training at the national headquarters, the regional rep is a link to all that HKNC has to offer ─ consultation, advocacy, assessment, training, referrals and more.

For more information, visit:  https://www.helenkeller.org/hknc/great-plains-region

Contact Information

Beth Jordan, M.Ed., CRC (Regional Representative)
Email: beth.jordan@hknc.org
450 E. Park Street  Olathe, KS 66061
Voice: 913-677-4562  VP: 913-227-4282

Maintaining a Home-School Relationship | CA
General strategies families can use to establish and maintain a good relationship between home and school.

Siblings of Children who are Deafblind | CO
Resource guide Strategies for Supporting Siblings of Children who are Deafblind,

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